Update on Afiq's visit to Plastic Surgery

Assalamualaikum,

Afiq's appointment with Plastic Surgery last Thursday yields positive news and worrying news.

 

Positive news:

Dr Shawal (plastic surgeon) agreed to do operation on Afiq's cleft as soon as possible. Could be this year. After Raya, there will be CT Scan. If results OK, they will proceed for operations. Which means at least 4 days in ward (1 day prep, 1 day op, 2 days post op). If all goes well, Afiq will soon be feeding as normal and not from gastrostomy tube anymore.

 

Worrying news:

Dr Shawal (HKB) concurred with Dr Wan Azman's (HUSM) earlier assessment that Afiq's cranium is not growing. Dr Wan Azman's assessment was that either the brain has stopped growing, resulting in the cranium stop growing, Or the cranium has stopped growing, therefore preventing the brain from further growth.

Whichever it is, both are worrying news. Dr Wan Azman was the leader of the group for combined clinic session, where experts from HKB and HUSM get together on monthly basis to review cases like Afiq's.

 

Will update more later on Hakimi.

 

Ouput of Kimi's session at CAMHS

Assalamualaikum,

Khamis lepas, terpaksa ambil cuti untuk bawa Kimi untuk appointment CAMHS di HKB. CAMHS stands for Child and Adolescent Mental Health Service. Tujuan jumpa doktor adalah untuk regular review status kimi untuk decide samada kimi perlu sekolah khas atau sekolah biasa. Tak lama lagi, kimi perlu masuk tahun 1 doh.

Apa pun, sesi ni sangat mengecewakan, sebab

1) doktor penting produktiviti - in her (Dr Rafidah) own words, "kimi boleh keluar, doktor nak tengok org lain pulak" walhal baru 5 minit masuk jumpa doktor dan doktor belum buat apa-apa pun dengan kimi selain dari baca file.

2) doktor gagal untuk berinteraksi dengan kimi. kimi tak respond langsung dengan doktor tu.

3) doktor taknak share diagnosis yang dibuatpada sesi ini

4)

5)

.

.

.

.

 

In other words, TIADA OUTPUT DARI SESI NI. Rasanya, nak sangat syarah ko doktor ni. Tapi kena control, kena cuba faham apa masalah doktor tu hari ini.

Next week (Khamis), Afiq kena jumpa pakar bedah plastik untuk buat assessment.